Thinking of you Cory, and wishing you as speedy and smooth a recovery as is possible.
Thank you for sharing that. I knew only the very basic facts about epilepsy and that really gave be a bit more knowledge of it as well as a real look at the toll it takes on a person going through it with the seizures and their aftermath.
Cory, I'm glad you shared about something so vitally important for us to understand. When friends love and care, they want to know how best to be supportive to you. I hope writing down your experience is helpful -- it sure helped me realize what an amazing human you are, that you've managed to build a life in spite of epilepsy. I want to honor that, Cory, but never minimize how hard and scary it's been, either. I'm an old nurse so I get the medical piece. And due to my own personal health challenges, I can empathize with something that remains chronic. I want you to know I see you and feel your words, Cory. We all missed you terribly when you werent able to be here, but your self care is important after these episodes -- just letting you know you matter to all of us. Sending much love... and since I'm a praying soul, all my healing prayers, too. 💞
I think it's easier to downplay conditions because of them being lived. It's something I've pretty much always had at this point, so to me it's normal.
When something hits that brings back how scary the condition can be, that's when it's a small wakeup call again.
I can relate to that-- bringing back how scary it can feel. That's how I get when my heart goes wonky. Thank you, Cory. I was glad to see you on Substack again but take good care.
Cory, I had no idea you’ve been living with epilepsy. I’m a slow, forgetful reader, having to do so repeatedly at times to ‘get it’~ but somehow I’ve missed this. It’s brave of you to share and make yourself available to others. God bless you in every breath and I pray your seizures lose strength, providing comfort and peace for you, in growing abundance.
I can't even compare to what you've shared, brother.
To every one of us—our personal challenges seem to be the largest. The impossible to bear.
Until we meet someone, who shares just a glimpse of their life, and all of a sudden we realize that our problems mean absolutely nothing in comparison.
I do have my personal challenges. But you are more important to me.
I hope you are better, and my thoughts are with you. 🩶
Thanks for sharing this; I genuinely had no idea any of the mental impacts of seizures. I’d love to hear more of your experiences, and how you’d prefer strangers to act when it happens to you if you have thoughts on it?
I've had the condition since I was 13 so I definitely have a bunch of experiences I could share. Perhaps I'll write some in-depth posts on some of the worst ones. Usually they are in safe environments, but when in public, that's when things can get pretty bad. Which as a kid, that was most of them, and part of why I was locked up in a room until adulthood.
For how others act to help, it depends on the type of seizures someone has. Most you don't hold someone down, mine I have to be held down. So typically those around me try and lock my joints and protect my head. I've had a lot of head injuries from them.
I personally would prefer people to stay away in case they may get hurt since I have fight or flight that kicks in. Yet I know it's probably better they have me under control or worse things could happen.
The important thing for anyone with epilepsy (that I know of) is to at least guard their head on the fall and in convulsions if possible. Also keep away any crowds that try to come around, that can trigger more seizures from the stress.
Wow bro. All the light your way ✨✨✨ thank you for sharing
Thank you for reading and caring, Emmett. ❤️
I hope you are doing well!
Thank you. Doing well. Hope the same for you 🫡
Thinking of you Cory, and wishing you as speedy and smooth a recovery as is possible.
Thank you for sharing that. I knew only the very basic facts about epilepsy and that really gave be a bit more knowledge of it as well as a real look at the toll it takes on a person going through it with the seizures and their aftermath.
Wishing you well.
Thank you, Gary.
There are many different kinds of seizures so I can't speak for others, but these are my experiences.
I hope you are doing well, too! ❤️
Cory, I'm glad you shared about something so vitally important for us to understand. When friends love and care, they want to know how best to be supportive to you. I hope writing down your experience is helpful -- it sure helped me realize what an amazing human you are, that you've managed to build a life in spite of epilepsy. I want to honor that, Cory, but never minimize how hard and scary it's been, either. I'm an old nurse so I get the medical piece. And due to my own personal health challenges, I can empathize with something that remains chronic. I want you to know I see you and feel your words, Cory. We all missed you terribly when you werent able to be here, but your self care is important after these episodes -- just letting you know you matter to all of us. Sending much love... and since I'm a praying soul, all my healing prayers, too. 💞
Thank you. I hope you've been healing well, too!
I think it's easier to downplay conditions because of them being lived. It's something I've pretty much always had at this point, so to me it's normal.
When something hits that brings back how scary the condition can be, that's when it's a small wakeup call again.
Sending love and positivity to you, too. ❤️
I can relate to that-- bringing back how scary it can feel. That's how I get when my heart goes wonky. Thank you, Cory. I was glad to see you on Substack again but take good care.
Cory, I had no idea you’ve been living with epilepsy. I’m a slow, forgetful reader, having to do so repeatedly at times to ‘get it’~ but somehow I’ve missed this. It’s brave of you to share and make yourself available to others. God bless you in every breath and I pray your seizures lose strength, providing comfort and peace for you, in growing abundance.
Thank you, I appreciate your words and comfort, Kimberly. ❤️
I hope you are healthy and doing well, too!
Seizures can make things hard. Hope your health improves with time.
Thank you, Priya. ❤️
This is very personal to share, and a very brave step.
Stay strong, brother. 🩶
Thank you, Ellis. I hope you are doing well. ❤️
I can't even compare to what you've shared, brother.
To every one of us—our personal challenges seem to be the largest. The impossible to bear.
Until we meet someone, who shares just a glimpse of their life, and all of a sudden we realize that our problems mean absolutely nothing in comparison.
I do have my personal challenges. But you are more important to me.
I hope you are better, and my thoughts are with you. 🩶
I think it's good to share the challenges you face. It lets others understand you 💖
❤️
Wishing you speedy recovery.
Take care Cory.
Thank you, I appreciate the support! Hoping the best for you, too.
Thank you Cory.
Take care dear friend.
🙂
Thanks for sharing this; I genuinely had no idea any of the mental impacts of seizures. I’d love to hear more of your experiences, and how you’d prefer strangers to act when it happens to you if you have thoughts on it?
I've had the condition since I was 13 so I definitely have a bunch of experiences I could share. Perhaps I'll write some in-depth posts on some of the worst ones. Usually they are in safe environments, but when in public, that's when things can get pretty bad. Which as a kid, that was most of them, and part of why I was locked up in a room until adulthood.
For how others act to help, it depends on the type of seizures someone has. Most you don't hold someone down, mine I have to be held down. So typically those around me try and lock my joints and protect my head. I've had a lot of head injuries from them.
I personally would prefer people to stay away in case they may get hurt since I have fight or flight that kicks in. Yet I know it's probably better they have me under control or worse things could happen.
The important thing for anyone with epilepsy (that I know of) is to at least guard their head on the fall and in convulsions if possible. Also keep away any crowds that try to come around, that can trigger more seizures from the stress.
🫂💛 Thank you for writing this Cory…wishing you peace and strength always!
Thank you. ❤️
I was wondering why I wasn't seeing your posts lately. Take care and hope you get better. Sending the best vibes 🙏
Thank you, Jesse. ❤️
I'm so sorry. I hope your health gets better.
Thank you, Li. ❤️
❤️
thanks for sharing about your journey. ♥️
Thank you for reading. ❤️
Thanks for the update, man. Wishing you a speedy recovery!
Thank you! I'm trying my best!
Currently trying to sort out a couple more physical injuries and then it's back to full mental health. 😅
🫂
❤️